julie Posted July 8, 2013 Author Posted July 8, 2013 Thanks , Janet & Diane Looks like no news today from the docs --- they'd be shutting down by now for the day ,so hopefully tomorrow . Starting to get a little antsy now . I appreciate your well wishes . Quote
Devi Posted July 8, 2013 Posted July 8, 2013 Thank you James A couple years ago if I would have been in this position , I'd be in Panic Mode . I guess there's something to be said for having lots of chronic illnesses . You know that your only course of action is to do as they tell you and hope for the best . The knee surgery will be my 2nd. I had the other replaced about 3 years ago . If I can do it once, I can do it again . I think I regard TOUGHNESS as one of the best qualities a person can have ,so I try my hardest to be TOUGH . ( Sometimes I totally fall apart, but don't tell anyone ) . This is me all over! I try to be tough, get up and shake things off when they happen, but sometimes you feel you want to run away into a corner and sit there crying cuddling your teddy! I know exactly how you feel at the moment, It's nice having someone who you can relate to what your going through when it comes to things emotionally - not nice that it has to happen this way, I think you know what I mean. Quote
julie Posted July 9, 2013 Author Posted July 9, 2013 Devi It's fine. I don't mind talking to you about it at all .I remember learning in nursing school ( way back in the dinosaur days ) ,that a patient's attitude has a lot to do with their rate of recovery or their ability to deal with serious illness. If you can keep a positive attitude ,or try your hardest to fight the illness, you can sometimes heal quicker and live longer if you don't give up . I also know how hard it is to keep that attitude. Very challenging to stay that way continually . Last time I was in the hospital ( March ) , I was SO sick .. pneumonia and a BAD fever . They kept me for 4 days ,which over here ,that is a long time. The insurance companies don't like paying the high rates, so they don't keep you very long for anything . Anyhow, I was trying my hardest to be tough ,but the 3rd day it finally hit me all at once. I found out that the nurses had been giving me 25 mcg of thyroid meds and I'm on 125 . I told them the pill wasn't like the ones I take at home ,then they happened to mention that my dosage was 25 --one nurse told another . By that point, my power level was about at a 1 out of 10 . The same day ,the Hubster stopped at the pharmacy to get one of my meds .They had raised the rate from $ 320 ( for 3 months) to $1401 for 3 months . He bought 2 pills and it was 65 bucks. When he told me that, I totally lost it and just sat there sobbing . Felt like an idiot ,but I had run out of TOUGH that day So there's nothing wrong with letting it out when things get too overwhelming. I think it's good to do that when needed . Just so you pick yourself back up, and keep on going . My last uncle I have is in his early 90's. The poor guy has had cancer in just about every place you can imagine. He gets up every day and squeezes every bit of enjoyment he can out of each day . He is my hero . So very impressive . I hope I can be half as tough as he is . Quote
Devi Posted July 9, 2013 Posted July 9, 2013 (edited) I say the same about my brother who passed away in 2008. He had multiple illnesses on top of a life threatening one, but he didn't let it stop him. He did what he wanted and we let him, as long as it didn't hurt anyone in the process of course. If we didn't have pbs (more information http://www.pbs.gov.au/pbs/home) here in Australia, I would be totally screwed. My MS needles would cost me $1180 a month for 15 doses (I have one every second day), that's $14,160 I would of had to find a year to treat my MS - and thats just one of my many medicines I am on. The pbs makes it so I only have to pay $5.80 a month per script covered by the pbs. I feel rather broken down at the moment, everything is just getting too much and I am starting to wonder what happened to my life. I just keep trying to think about my holiday to qld, I am very much looking forward to it. I've been so down that I have considered stopping my meds, because I feel I am losing the fight over my MS symptoms. I know it sounds stupid and aweful. I hope everything truely goes well for you. Edited July 9, 2013 by Devi Quote
julie Posted July 9, 2013 Author Posted July 9, 2013 Devi I'm so sorry about your brother . How old was he ? Wow, your med costs beat mine ! I think our country needs to take some advice from some of the others when it comes to health care costs . It's ridiculous . I know how you feel, you have days when you say you are so sick of all the doctors ,tests, meds ,etc . I've made the same comment, I just wanna stop it all . Gotta keep going ,though . If you stopped ,your body would take a long time to readjust to the meds ,so it's best to keep on going or it'd probably be a lot harder on you . I guess it's lucky we have our books as a hobby . Doesn't take much physical exertion to read . Quote
julie Posted July 9, 2013 Author Posted July 9, 2013 Just an update on the tests -- Kidney results are running about in the area they have been --not the best ,but not the worst . Parathyroid level is slightly elevated . The hospital just now told me they can't do the thyroid cancer test, so they had to forward it on to another lab. Results won't be back until at least a week after the test was done . If you all hear of unusual bolts of bright blue lightning from Ohio , it's just me Cussing a Blue Streak . Quote
pontalba Posted July 9, 2013 Posted July 9, 2013 grrrrrrrrrrrrrrrrrrrrrrrrrrrrrr! Don't you just love "organization"? Sorry they've done that Julie..... Quote
Devi Posted July 10, 2013 Posted July 10, 2013 (edited) I hate when they do that You think they would know they couldn't do the test result in the first place. My brother almost made it to 22. Edited July 10, 2013 by Devi Quote
julie Posted July 10, 2013 Author Posted July 10, 2013 Well, another day .... today I'm not gonna sit here waiting all day to hear from the doc, so maybe I'll get out a bit to take my mind off stuff . Devi So very sorry about your brother . such a young age .....I hope you have good memories of him ,so he will always be in your heart ,even though he's no longer here in person . I'm sure he is watching over you and with you all the time . Don't know if you believe in things like that ,but I sure do . Quote
Chrissy Posted July 10, 2013 Posted July 10, 2013 Sorry to read that about your brother, Devi. Julie, what can I say aside from throwing in a Grrrrrr! to the impossible frustration of it all for you? Quote
poppyshake Posted July 10, 2013 Posted July 10, 2013 So sorry to hear that Devi Oh Julie .. how frustrating for you Hang in there girl .. make one of your coalminer's boot sandwiches (they could kick a** on their own ) and fortify your spirit. Hope you've cussed a blue streak good and proper .. I think you could give it some more welly because I haven't heard you yet so you obviously haven't reached maximum. Keeping everything crossed that you'll hear positive news soon. Quote
Devi Posted July 10, 2013 Posted July 10, 2013 I imagine he is sitting there with my dad who passed away suddenly in 2004, they were always very close Quote
Athena Posted July 10, 2013 Posted July 10, 2013 I'm sorry to hear about your brother, Devi . It must be terrible to lose him at so young an age. @ julie That's pretty stupid that you have to wait another week, it must be difficult I hope you can deal with it okay . Quote
pontalba Posted July 12, 2013 Posted July 12, 2013 I hate when they do that You think they would know they couldn't do the test result in the first place. My brother almost made it to 22. Oh, Devi. That was just too rough. Very sorry about it. Well, another day .... today I'm not gonna sit here waiting all day to hear from the doc, so maybe I'll get out a bit to take my mind off stuff . Devi So very sorry about your brother . such a young age .....I hope you have good memories of him ,so he will always be in your heart ,even though he's no longer here in person . I'm sure he is watching over you and with you all the time . Don't know if you believe in things like that ,but I sure do . That's right Julie, get out there, run around as much as you can. Raise general, bloody hell! lol It's good for ya!! Sitting by the phone waiting for it to ring is the pits to say the least. Plus, a watched pot never boils. Quote
julie Posted July 13, 2013 Author Posted July 13, 2013 Good news to report . The doc's office called last afternoon to report my test came back ok ~~~~ WHAT A RELIEF .... I was sweating bullets the past few days .The longer the wait, the more you start thinking the worst . Anyhow, that is one less burden to carry around . I actually just completed the same book I've been reading for ages . Review to follow . Thanks ,you guys , for all the encouragement . It is highly appreciated . Quote
julie Posted July 13, 2013 Author Posted July 13, 2013 The Bolter - Frances Osborne 5/5 This book is a true story about Idina Sackville ,told by her great granddaughter . Idina was among a wealthy group of people ,whose heyday started in the early 1900's . Nancy Mitford used Idina's life as the character "The Bolter " in her book " The Pursuit of Love " . Idina was considered quite a rebel during her lifetime . She really didn't care about acting properly ,or following a strict set of rules . She seemed to enjoy making her own rules in life .Whatever made her happy was usually the path she took ,whether anyone else approved or not . She was married and divorced 5 times and had too many other partners to even count . She loved throwing wild parties where pretty much everyone else enjoyed the same lifestyle as she did . Oddly, you'd think she would have had a lot more enemies than she did , but most people who got to know her truly loved her . She was among a group who settled in Kenya in an area nicknamed Happy Valley . It did seem to be a magical place where everyone was happy for many years ,but as time went on, the choices they all made began taking their toll . Other well known people mentioned in the book were Beryl Markham, Karen Blixen , and Denis Finch-Hatton . I really enjoyed this book and will hopefully someday read it again when life is calmer and I can read it consistently instead of reading it in fits and spurts . I think it'd be even better if I did that . Quote
Athena Posted July 14, 2013 Posted July 14, 2013 Julie, that's such good news !! I'm so happy for you. Quote
Devi Posted July 14, 2013 Posted July 14, 2013 Thank you everyone. That is fatastic news Julie!!! I am so happy you finally heard :D Quote
pontalba Posted July 14, 2013 Posted July 14, 2013 (edited) Julie, I can't tell you how happy I am for you!! Happy Days! About a thousand pounds just slipped off your shoulders! YAYS!!!!!!!!!!!!!!!!!!!!!!!!!!! Edited July 14, 2013 by pontalba Quote
julie Posted July 14, 2013 Author Posted July 14, 2013 Thank you kindly, guys -- and yes, it is a huge worry that has been eliminated . I was prepared for whatever they told me ,but am REALLY glad I don't have to do anything else now for that situation . The doc does a yearly checkup, bloodwork and ultrasounds on occasion, just to keep an eye on things, but I'm not due to go back for a visit til February ,so that gives me a lot of time to think about other more pleasant stuff . Quote
poppyshake Posted July 14, 2013 Posted July 14, 2013 I'm very, very happy for you Julie .. fantastic news Quote
Devi Posted July 15, 2013 Posted July 15, 2013 I think you should celebrate with a book buying spree! Quote
julie Posted July 15, 2013 Author Posted July 15, 2013 Thanks Miss Poppy Devi The book-buying celebration sounds like a good idea ... Look out , Amazon. I may just do a little bit of Kindle -book shopping . Quote
julie Posted July 15, 2013 Author Posted July 15, 2013 (edited) Thanks , Alexi Edited July 16, 2013 by julie Quote
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